While his anti-vaccine allies swooned and scientists cringed, HHS Secretary Robert F. Kennedy Jr. used his first-ever press conference this week, in response to new data showing an apparent increase in the number of autistic kids, to promote a variety of debunked, half-true, and deeply ableist ideas about autism. He painted the condition as a terrifying “disease” that “destroys,” as he put it, children and their families. Kennedy made it clear he planned to use his powerful role as the person in charge of a massive federal agency devoted to protecting public health to promote the idea that autism is caused by “environmental factors,” a still-speculative thesis that’s clearly a short walk towards advancing his real aim: blaming vaccines.

Kennedy has spent the last 20 years promoting anti-vaccine rhetoric, falsely and repeatedly claiming that vaccines are linked to autism. Yet as the press conference made clear, Kennedy knows startlingly little about autism. In the course of his remarks, he detoured into a rabbit hole filled with pseudoscience about the condition, providing a vast display of all the things he does not seem to know about current research and basic facts about the condition.

Here’s a list of just a few of the major pieces of misinformation Kennedy shared.

Falsely framing autism as a debilitating “disease” and an “epidemic”

Kennedy’s ableist and factually incorrect framing of autism relies on explicitly calling it a “disease,” when most scientists refer to it as a “disorder.” Many autistic self-advocates object to that framing too, saying that autism is part of the wide range of human neurodiversity.According to data released in 2021, roughly 61.8 million people worldwide are believed to be somewhere on the autism spectrum.

Most significantly, autism is widely agreed to exist on a spectrum—hence its clinical name, “autism spectrum disorder”—and autistic people have a wide range of abilities and ways that their autism expresses itself. In remarks that drew the most scrutiny, Kennedy depicted profound autism as something that inevitably robs children of their abilities, proclaiming: “These are kids who will never pay taxes. They’ll never hold a job. They’ll never play baseball. They’ll never write a poem. They’ll never go out on a date. Many of them will never use a toilet unassisted.” (Our colleague Julia Métraux interviewed autistic poet and attorney Elizabeth McClellan earlier this week, who said his remarks are “useless eaters rhetoric,” the eugenicist idea used by Nazi Germany in the 1930s to dehumanize and eventually murder disabled people.) A press release issued by HHS this week even referred to autistic children as “afflicted.”

Kennedy previously claimed that under his guidance, HHS intends to uncover the causes of autism by September, a timeline as improbable as it is highly specific.  One autism researcher, who asked to speak anonymously in order to freely address their concerns, told Mother Jones that framing autism as a “disease” with environmental causes seemed designed to set up Kennedy “as the ‘savior’ to the autism community” when he claims to have discovered its cause. The notion that there is a single cause of autism is, to put it mildly, not at all backed up by the decades of research on this highly complex diagnosis.

Framing autism as a “disease” with environmental causes seemed designed to set up Kennedy “as the ‘savior’ to the autism community” when he claims to have discovered its cause.

Declaring that autism is “clearly” caused by “environmental toxins”

But Kennedy took on step towards meeting this self-imposed deadline by stating, “This is coming from an environmental toxin,” adding the provocative assertion, “And somebody made a profit by putting that environmental toxin into our air, our water, our medicines, our food.” He promised that within two to three weeks “we’re going to announce a series of new studies to identify precisely what environmental toxins are causing it.” He also floated the idea of using AI to help in those studies.

The causes of autism are still being studied, but it’s widely thought that both genetics and environmental factors likely play a role in who develops it. Nor are those environmental factors necessarily “toxins.”

Dr. Paul Offit is a virologist, a pediatrician, the chief of infectious diseases at the Children’s Hospital of Philadelphia, and a co-inventor of the rotavirus vaccine used in infants. He told Mother Jones that a variety of factors can contribute to the risk of developing autism, including advanced maternal or paternal age, intrauterine infections when the mother is pregnant, genetics, and maternal health.

“What those four things all have in common is that you’re born with autism,” he says. All the evidence, he says, “is that these are events that are occurring while the child is in the womb,” rather than what anti-vaccine advocates have suggested many times, that autism is caused by vaccines received after the child is born.

Craig Newschaffer, a professor of biobehavioral health and an autism researcher at Pennsylvania State University’s College of Health and Human Development, said that while he believes environmental exposures could play a role in autism, the interaction between those and other factors is incredibly complex. “There’s probably a constellation of environmental factors that could be involved here that they probably account on their own for small increases in risk,” he said, “and they probably work in concert with genetic mechanisms.”

Rejecting the idea that increased autism rates are due in part to better diagnosis and surveillance

The press conference was called to respond to a new CDC report which showed a small increase in the number of 8-year-olds diagnosed with autism. Kennedy repeatedly rejected the idea that the increase was due to better autism diagnosis tools and surveillance, declaring that making that argument amounted to “epidemic denial,” and saying that genes “don’t cause epidemics.”

Kennedy also said that the root causes of autism could be found much faster “because of A.I. and because of the digitalization of health records that are now available to us.”

Craig Newschaffer, who has spent the better part of his career studying potential causes of autism, called Kennedy’s idea of using artificial intelligence to quickly solve the mystery of autism “extremely infeasible.” He noted large-scale efforts are already underway to use machine learning to analyze existing autism datasets—but the results of those studies, he said, are at least five years away.

Yet Penn State’s Newschaffer said his research had suggested that expanded diagnostic capabilities were indeed an important contributor to increasing autism rates. “There’s been lots of accumulation [of evidence] that the diagnostic tendency is a strong, strong factor in this,” he said.

Claiming there are “no” older autistic adults

To bolster his claim that environmental exposures are causing autism rates to climb, Kennedy argued that older adults are not autistic. “Have you ever seen anybody our age—I’m 71 years old—with full-blown autism?” he asked. “Headbanging, nonverbal, non-toilet-trained, stimming, toe-walking, these other stereotypical features—where are these people walking around the mall?”

Putting aside the scornful and stigmatizing way Kennedy spoke about profoundly autistic people, it’s simply not true that there are no older autistic adults, which we know for many reasons, including the fact that their health outcomes have been studied for years.Autistic elderly people are at greater risk than the general population for a range of health conditions, including cardiovascular and metabolic disease, and they’re also more likely to suffer from anxiety and depression. Older autistic adults report loneliness at higher rates than the general population, and research suggests that many of them could benefit from the social services and support they do not currently receive. All of these factors could limit the likelihood that Kennedy might see them “walking around the mall.”

Relying on an expert who has connections to pseudoscience groups

Kennedy also brought Dr. Walter Zahorodny to join him on the stage. An associate professor of pediatrics at Rutgers University’s medical school, he has beena lead researcher on the New Jersey Autism Study, which has monitored the state’s autism rate for two decades.

Zahorodny said during the press conference that he believed that the uptick in autism rates could not be explained by expanded diagnostic criteria. “I would urge everyone to consider the likelihood that autism, whether we call it an epidemic tsunami or a surge of autism, is a real thing that we don’t understand, and it must be triggered or caused by environmental or risk factors,” he said, echoing Kennedy who has also claimed it is triggered by “toxic exposure.”

Zahorodny has collaborated with researchers and groups who deal in pseudoscience or are controversial in the autism community. He appeared in a 2018 video produced by SafeMinds, a group that has suggested that mercury in vaccines causes autism and regularly works with Kennedy’s anti-vaccine group Children’s Health Defense. In 2020, Zahorodny co-authored a study of autism rates in Black and Hispanic children with Cynthia Nevison, a University of Colorado climate scientist who is also a contributor to Children’s Health Defense. There, she writes not about climate but rather about her frustration with the lack of research into the “root causes” of autism. In addition, Zahorodny appeared on a 2020 episode of a podcast produced by the National Council on Severe Autism, which has come under fire for its support of the use of restraints for autistic people.

Melissa Alfieri Collins, an anti-vaccine activist in New Jersey, said in an email to Mother Jones that she had worked with Zahorodny in 2019 on her effort to defeat a bill that would have eliminated religious exemptions for childhood vaccination requirements. Zahorodny, Collins recalled, briefed legislators and “stated that vaccines could not currently be ruled out as one of multiple possible causes of sharply increasing autism prevalence.” The bill ultimately failed. Zahorodny did not immediately respond to a request for comment.

Overall, Kennedy’s message worried autism researchers and mainstream scientists. But it was received ecstatically by the anti-vaccine community he’s long been a part of. Anti-vaccine activist Larry Cook, a California naturopath and one-man anti-vaccine clearinghouse, approvingly shared a tweet from Kennedy, underlining the places where the secretary referred to the “autism epidemic” and characterized autism as being “preventable.”

“We had the answers over 40 years ago,” Cook tweeted. “They were buried, dismissed, ridiculed, assassinated.”

Del Bigtree, a prominent anti-vaccine activist and the former spokesperson for Kennedy’s presidential campaign, who’s now the CEO of a group he co-founded with Kennedy called MAHA Action, also expressed his enthusiasm.

“For decades we have been gaslit by every HHS Secretary that stood at this podium and denied that autism was an epidemic as it climbed from 1 in 10k to 1 in 31 (1 in 12.5 boys in CA),” he tweeted. “If you are watching a news organization that is not celebrating RFKJ in this historic moment it’s time to cancel your subscription forever. It’s now clear who they work for. #MAHA”

From Mother Jones via this RSS feed